Child Support Care Team - University Hospital in Motol

History:

In 2016, a Children's Palliative Care Working Group formed by selected hospital employees was established at the Faculty Hospital in Motola. Members of the working group thanks to the financial support from the grant Avast Endowment Fund in 2016 and 2017, they received professional training in specialized palliative care (foreign internships, courses, training) and, together with several newly arrived specialists, created a palliative team for the children's section of the Motol hospital. In the first period (from September 2017 to December 2017), the team offered care at the end of life mainly to oncologically ill children in the terminal stage of the disease, in the form of outpatient support and palliative care under Department of Pediatric Hematology and Oncology, 2nd Faculty of Medicine, UK and FN. Since January 2018, the scope of the palliative care team has been extended to the entire children's part of the hospital, so that it is possible to offer specialized supportive and palliative care to all pediatric patients with life-threatening or life-limiting diseases, i.e. not only children with oncological diseases. During 2018, the team's care was extended to hospitalized patients across all workplaces of the children's section of the hospital. The children's support and palliative care team began to function as a consultative team as a separate workplace and historically became the first and so far the only palliative team for child patients in the Czech Republic.

In June 2019, the Motol Child Support and Palliative Care Team of the Motol University Hospital was supported by a grant project entitled “Palliative Care Support - Increasing the Availability of Palliative Care Health Services in Acute and Aftercare Hospitals (Reg. Number: CZ.03.2.63 / 0.0 / 0.0 / 15_039 / 0007277) ”, implemented by the Ministry of Health of the Czech Republic within the Operational Program Employment, financed from the European Social Fund.

https://www.mzcr.cz/dokumenty/informace-o-projektu-podpora-paliativni-pece-zvyseni-dostupnosti-zdravotnich-s_14874_2452_8.html

Currently:

The children's support and palliative care team of the Motol General Hospital is historically the first palliative team for child patients and their families in the entire Czech Republic. We take care of both pediatric patients hospitalized in our hospital, as well as children already discharged to outpatient care and their families. We care for children with life-threatening and life-limiting diseases, typically with the following diagnoses: hemato-oncological diseases, congenital developmental defects and genetic syndromes, severe forms of epilepsy and other serious neurological diagnoses, conditions after a serious injury with permanent consequences, children with cystic fibrosis, children before organ transplants, severely premature babies. The Motola workplaces with which we cooperate most often include the Pediatric Hematology and Oncology Clinic, the Pediatric Clinic, the Pediatric Neurology Clinic, the Children's Cardio Center, the Anesthesia and Resuscitation Clinic - children's aro, the Gynecology and Obstetrics Clinic - neonatology department. As part of the continuity of care in the region, we cooperate closely with regional hospitals, with general practitioners for children and adolescents, with children's centers, with home care agencies and with mobile hospices throughout the Czech Republic.

Team members:

There are currently 22 of us:

6 male and female doctors
4 children's nurses
2 psychologists
3 social workers
1 spiritual worker
1 bereavement therapist
1 physiotherapist
1 occupational therapist
1 project manager
1 scientific and research worker

Our consulting room

Frequently asked Questions:

Who is indicated for inclusion in DPPT care?

A patient with a disease that threatens or limits his life. Children with the following diagnoses are typically referred to the care of the team: hemato-oncological diseases, congenital developmental defects and genetic syndromes, severe forms of epilepsy and other serious neurological diagnoses, conditions after a serious injury with permanent consequences, children with cystic fibrosis, children before organ transplants, severely premature children.